SMASupportUK

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We are an established charity that supports and empowers anyone affected by Spinal Muscular Atrophy.

http://www.smasupportuk.org.uk/

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The Cameron Family topped off a fantastic year of fundraising for SMA Support UK by hosting a Christmas Coffee and Cake Day and raising an incredible £307! Huge thanks to them all for their brilliant support.

#christmas2017 #christmas #coffeeandcakeday #coffee #cake #cakesofinstagram #fundraising #raisingawareness #smaawareness #thankyou #sma #spinalmuscularatrophy #smasupportuk #spinalmuscularatrophysupportuk
Catalyst Pharmaceuticals have announced that they are to investigate the potential of a repurposed drug called Firdapse as a treatment for people with SMA Type 3. Read more in this latest research article from our Scientific Research Correspondent, Dr James Sleigh: http://bit.ly/2AYp7Om 
#catalystpharmaceuticals #researchupdate #researchnews #scientificresearch #smaresearch #smatype3 #researchcorrespondent #sma #smasupportuk #spinalmuscularatrophy #spinalmuscularatrophysupportuk
Our virtual Christmas Tree is now live on our website! You can pick your favourite colour bauble to hang on our SMA Support UK tree and include a personalised, festive message: http://bit.ly/2A4uOq4

#christmastree #xmastree #baubles #virtualtree #colour #pickone #favourite #sma #spinalmuscularatrophy #smasupportuk #spinalmuscularatrophysupportuk
Please be aware that the SMA Support UK office will be closed from Thursday 21st December 2017 at 3:30pm and will re-open on Tuesday 2nd January 2018 at 9am. We will be posting further details, later in December, about where you can access other support and information about SMA during this time.

#officeclosure #christmas #notice #office #sma #smasupportuk #spinalmuscularatrophy #smasupportuk
Huge thanks to our volunteers who were out this week with the Wellesbourne Lions Santa Float raising funds for SMA Support UK!

#thankyou #fundraising #santa #wellesbourne #lions #sma #spinalmuscularatrophy #smasupportuk #spinalmuscularatrophysupportuk
Today is Christmas Jumper Day for SMA Support UK! Thank you to everyone who is getting in to the festive spirit by joining in with our annual fundraiser. Don't forget to tag us in your photos! 
#christmasjumper #christmas2017🎄🎅🎁 #sma #spinalmuscularatrophy #festive  #festivefun #fundraiser #smacommunity #smasupportuk #spinalmuscularatrophysupportuk
Contact's research has shown that there is still a lot of confusion about who is entitled to DLA, and, as a result, many families miss out on the vital benefit. Contact have looked at some of the main reasons parents assume their child is not eligible for DLA and bust some of the myths surrounding it: http://bit.ly/2iFI9yu
Prominent blogger @themumonamission has set up a petition calling for the 6 main supermarket chains to commit to providing Changing Places toilets in their stores within the next 18 months. All of these supermarkets provide toilets for their customers. However, only 9 of the 2600+ stores currently offer Changing Places-style toilets. Find out more: http://bit.ly/2BIBcJV
The Big Give Christmas Challenge has now closed. We would like to thank everyone who helped to raise a staggering £13,625.50! This is an incredible achievement and we cannot thank you enough for your support.
We had a fantastic time at the Santa Run in London yesterday. Thank you to all our wonderful runners who joined us to celebrate the incredible fundraising efforts of our supporters in 2017. We look forward to supporting more of you with your fundraising in 2018! 
#runsantarun #santarun #london #runningevent #running #fundraising #thankyou #youreamazing #2017challenge #sma #spinalmuscularatrophy #smasupportuk #spinalmuscularatrophysupportuk
We hope everyone at our Bournemouth, Leeds and Northern Ireland Winter Parties has a fabulously-festive time this weekend! Keep your eyes peeled in the new year for upcoming SMA Support UK events. 
#bournemouth #leeds #northernireland #winterevents #christmasparty #party #christmas2017 #xmas #upcomingevents #smacommunity #sma #spinalmuscularatrophy #smasupportuk #spinalmuscularatrophysupportuk
We're nearly halfway through The Big Give Christmas Challenge and you've already helped us raise an incredible £10,541! The Challenge runs until midday on Tuesday 5th, but matching funds are limited so please don't delay if you wish to make a donation: http://bit.ly/2hKEfDw

#biggive #christmaschallenge #xmas #christmas2017🎄🎅🎁 #christmas #makeadifference #makeitcount #donate #thankyou #helpfortoday #sma #smasupportuk #spinalmuscularatrophy #smasupportuk